I am officially back on the bike! At least a bit. I’m
feeling slightly less flat-out awful than I had been over the past weeks, and
today went for a 4 hour endurance ride with some other semi-broken racer
friends (one is recovering from being struck by a car, the other from
tendonitis).
Here’s hoping that I’ll manage to avoid more surgery in the
future, if things keep on looking up. The difficulty of all of this is that at
this point cycling may actually BE my only option for non-surgical treatment.
Because of a melanoma that showed up on my ear over the course of one week last
May, and was described as “surprisingly pathological”, many of the immune
suppressant agents that are the go-to’s of current treatment for severe Crohn’s
disease are totally out of the question. And, I’ve been through the ringer with
everything else and it hasn’t worked. I’ve also already got the bone density of
a bird, which means that prednisone is a dangerous choice for more than a week
long course once in a blue moon.
And so, my treatment plan is to try to stay positive, avoid undue
stress (but I have so many tests to take at school!), and keep riding and
enjoying life as much as possible. Why
does this work? We do know that endorphins and exercise (independent of
endorphins) help the body regulate inflammatory processes and intestinal
health. For one thing, your intestines have neurochemical receptors and an
entire network of nerves of their own to communicate with. It’s not entirely
clear by what mechanism exercise and joy itself help control the inflammatory
processes of IBD, as opposed to generally supporting a healthy system, but
there is some evidence to say that it does.
Sounds simple? No. Consider for a moment what that means in
the face of a painful and often disparaging illness. Keeping a positive outlook
and getting on the bike even when I feel exhausted or otherwise horrible may be
one of the most difficult prescriptions there is. Comparatively, I tend to
think that Remicaide infusions were a piece of cake.
However, there is something also amazing about deciding to put
off studying to ride in the sunshine because it is a prescription.
quality climbing right in my own backyard. sunshine but no spring foliage yet.
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Note: I really truly do not follow the “think
positive and good things will happen to you” train of thought. Please do not
confuse this post with that genre of [weak] logic. Bad things do happen even to
those who are good people and try hard and have a positive outlook. But,
because we know that neurotransmitters are partially influenced by emotion and
stress, we can consciously control some of those internal processes by learning
to alter the way we react to daily life. This general idea of the trainability
of reactions is the premise of cognitive behavioral therapy (CBT). For some
people, that might be helpful in managing stress related IBD flares.
Personally, cycling is my stress management tool and joyful addiction, so I
haven’t gone that route. But, because I really do believe in the science behind
it, I have suggested CBT to a few of my weekly-stress-crisis having classmates
who don’t have IBD but none the less do experience extreme GI upset every week
before